In 2008 I sent a letter to a society, of which I have been a member for over ten years, which deals with mental health. The entire letter is shown below. I have nothing against the organisation and am still a member, but to date I have had no response. This is their right, but I would like to make my views public. The condition is just my assumption, but the letter is about how one bases its diagnosis.
Dear Sir or Madam,Having being a member of your society for over ten years, I feel the time is right for me to write this letter. How I came to join your association was initially started by going to my doctor and asking him if there was any genetic test to verify if I was a manic depressive. He had been my doctor for many years at this point and my medical records show no history of any manic depressive episodes or treatment. This applies right up to the present day.
I have never had any prescriptions or medication to control depression or mania. I have never had the need to take any anti-depression drugs. I went back to him several days later and he had phoned around, and said that there was no genetic test for manic depression. I have never mentioned the subject to him again.
Knowing research was going on to identify it in one's genes, I happened to notice a brochure in the doctor's surgery, which must have been distributed to various surgeries. So I took the information and joined shortly thereafter. I am sure at the time, membership of the society was not determined by whether you were a manic depressive or not. I don't know if it has changed to this date. My reason was to keep up to date with the research on manic depression, with hopefully a DNA test which I have sought.
All the testing at the moment is on people who have been diagnosed with manic depression. It has been said that half of all manic depressives are undiagnosed. I think I am in this half. I watched a series recently on television, where they can determine the likelihood of you being at high risk of certain conditions such as Alzheimer's through DNA testing. I am sure that of the studies that have been done on manic depression at the moment, using DNA, they must have identified (even at this stage) some of the genes. But it is not as simple as being one gene, it is a combination of genes.
Another important factor, however, is one's environment from day one, which can be a trigger later in life. I think the criteria to determine whether you are a manic depressive is out of date. The point system, which determines the degree by which you suffer from manic depression is through examining the number of times you have been hospitalised, any criminal record (associated with the condition) and the number of times one has been sedated.
If I was to fill in a questionnaire, these are the kinds of questions I would be asked to determine if I was or was not a manic depressive Most likely if an interview took place, I would be classed as an eccentric if I tried to explain my general personality. I would have no personal gain in entering into a questionnaire, but I feel that there is a positive side to the condition and it is not all doom and gloom. So you can judge on the positive side of manic depression, which I think the origin has made Man what he is today.
I give some examples of the positive side. I left school at fifteen having gone through school in the lowest band due to the fact I am dyslexic. I believe there is a link between manic depression and dyslexia in some cases. My father was also dyslexic, but every term except one, I was top in Maths and the one I wasn’t, I was off ill. As many subjects are tied into English, this put me into bottom band. This resulted in me going down a coal mine at fifteen. My father had a similar fate in life. He could well have been a headmaster without dyslexia and because of this, I was determined not to follow the same path, but to use the talent I was born with. The dyslexia was actually a great help, something that I was aware of from the age of six. I knew I had to develop what I was good at, so I had to delve into my inner self and this helped greatly in adolescence.
When I think back to adolescence and what you go through, it was actually the onset of what I believe is manic depression. Most teenagers go through the turbulent years, changing from boyhood to manhood. You expect, in your early 20s, for this to subside as it does in most people, but for me it didn't. I thought it would give me a greater depth, which would eventually help me later and this is the way it turned out. I knew I could not get off the merry-go-round, but the important thing was not to fall off. Not just to cling on, but to use it, to give one strength and endurance for any challenge you may give yourself later in life. So you have to have an inner faith in oneself. The kind of things I was going through, was not being on a mental edge caused by drugs and drink or anything in this area.
At twenty-one, I was informed by my girlfriend at the time, that I was to become a father. Something that had been on the cards for years. The girlfriend has now been my wife for over forty-one years. I had avoided most obstacles. My biggest risk to life and limb in my teenage years was a motorbike. It was like, what a bottle of whisky, is to an alcoholic. As the saying goes I survived this period ‘by the skin of my teeth’. I knew if I didn't get rid of the motorbike when I was about nineteen, I would be dead by the age of twenty. Like an alcoholic would say, I have had my last drink, and a few hours later he would be on another bottle.
Throughout my life, alcohol is something, I have been able to control. I can understand, though, how easy it would be to be an alcoholic and one drink is never enough. I also had my last cigarette at twenty-one. This again could not stop at one cigarette. I was smoking forty-a-day. My father had the same addiction and died of lung cancer. Different to alcohol you have to draw a line. I still know to this day, I cannot smoke just one cigarette, so it has to be absolute. Being aware of the damage to one’s health, I keep alcohol under control as much as one can. Sometimes in small or large doses, it can be a stimulant to one’s creative side, but taken to excess it is a depressant and is counter productive. I found out later, my father was told in his late twenties, if he didn’t stop drinking, it would kill him. He used to drink a bottle of whisky a day.
Up to getting married at the age of thirty-four, my father had a privileged lifestyle. He was late in getting married, so when I was a teenager, my father was in his fifties. He never spoke about his own personality. I only knew his personality from what I could see. Being older, he had stability, which both my parents had from their upbringing, so this gave me a very good base. This is why I have such a good foundation to this day. As he never touched on his own life, I felt a bit like an orphan because my personality didn’t fit my parents’ personalities. If I had been born when he was twenty, I am sure I would have seen a more fiery personality, but again he had that stable family upbringing.
I always remember my father’s brother coming to his funeral (I was twenty-nine at the time) and he said that when my father was a teenager he had red hair, and his nickname (in the pubs he used to go to) was ‘Rabies’. And he would purposely be argumentative and always have the opposite opinion of anyone just to create an argument. This is different to the man I knew, who would have a white shirt and tie on most days, sometimes change a collar twice in a day and would clean his shoes every day, along with mine. So at this point you start to understand your own teenage years and, maybe, this was the point, I started the quest to know what really made me tick.
When I knew that it was not caused by any childhood events, but something I had inherited and I knew that it was an advantage if understood. There was a sting in the tail though, something that one should not forget even to this day. I knew as if by instinct, one’s mental health was greatly helped by one’s physical health and diet. Right from my school days to the present day, I have always adhered to this. You can have the odd bottle or glass of whisky, but not at the expense of either exercise or diet. This is what drives the mind and gives you the energy. So when I go up a gear, I know there is fuel in the tank. I have never been close to putting it on reserve. This is not just mental, but physical endurance. I will give you an example of this.
At the beginning of 2006, I felt like a mental break having spent many summers working on my boat. I have always tried to expand my daughters’ horizons in the past, so I thought for my eldest daughter and granddaughter, I would give them a physical and mental challenge. So I decided we would cycle across France i.e. from the English Channel to the Mediterranean (Le Havre - Montpellier). This included the Midi-Pyrénées, which is over 1,000 metres at its highest point. This was 628-mile trip, where we carried our own food, water and camping equipment.
The granddaughter was only seven at the time, so I thought it was too much to expect her to cycle at that age. So I decided I would pedal for two of us on a tandem. I put a bar on the frame, which she could put her feet on, so she had no contact at all with the pedals. The bike was only five speed. This meant that if the hills were too steep, we would walk up them. We must have walked over forty miles and we did this in June. During the second half of the trip, temperatures were hovering near 40oC. We would cycle from about 10:30am until 6:30pm on average, systemically each day. Instead of four weeks we did it in two. As we had booked our return for four weeks time, we decided to go down to Marseille and then back to Montpellier. This made a total of 1,000 miles. It was done as an exercise. Once I have set myself a task, there is no turning away from that. That is part ofmy genetic structure, whatever you want to call it.
Some time after coming back, I decided to take on a bigger challenge. The outcome was just as inevitable as the last one. This time a coast-to-coast cycle trip across America (southern trans-continental route) i.e. either from St. Augustine, Florida to San Diego, California (passing along the Gulf Coast, the deep south, the Texas Hill Country and the Southwest) or vice versa. When the idea came to me over a year ago, within five minutes of the original thought, there was no turning back with or without the daughter or granddaughter. We have planned, though, for all three of us to do it as before. The added twist is that the bike will not be conventional i.e. they will be recumbents (a bike where you lay down to pedal). The granddaughter will be on the tandem, but this time she will have to do a percentage of the pedaling. As she has been home educated from day one, this will be an environmental, cultural and character building exercise. I used to take my daughters, at a younger age than this, into the Sahara desert as I lived and worked in Algiers for five years. What I have just explained regarding the cycling, is just a taste of what I could mention.
I have lived at my present address for nearly thirty years. After only living here for two years, I decided living in a house wasn’t for me. Just after getting married, I left my roots of North Derbyshire and went to live a mile away from a little fishing village called Watchet (Somerset) in a caravan on a residential site, quite close to the beach. I worked in the local paper mill in Watchet. The wage was very poor compared to what I was earning in the coal mines in Derbyshire, but the concept was right. At times I would catch dogfish and live on them as the wages were that low. I lived this life for six years.
One day I had a chance to work in the city of Algiers commissioning a new paper mill. At the last minute, the man who was going pulled out, and within ten days I was out there. No interview and I signed the contract at Heathrow airport. It was a five month contract on bachelor status. I said to the wife, I would have her out in a few weeks, but the contract stated that they were not allowed out there. Within a few weeks I did get them out there, but we had to find our own accommodation - fifteen miles from where I worked. I got a bike and cycled there - fifteen miles each way, every day. Not the safest of places to ride a bike. One day I was hit by a car from behind. He must have been doing 60 mph. I went through his windscreen, he braked, I went back onto his bonnet, fell in front of the car and he braked just in time before running over me. After that, I was down to using the bus, which was crowded to say the least. This was just one incident that I had to deal with in the early months.
Eventually I got onto the technical assistance team, where I was entitled to a company car and villa as by this time I had proven my worth. When I took on the job in the beginning, I only had £37 in the bank. When I left there five years later, I was in a position to buy a house. The house was more for the wife, not me. Having spent two years in the house, I knew I couldn’t spend the rest of my life vegetating in this way, so I decided to build a boat to live on. Again the dye was cast. This has been the longest event I have ever been involved in.
The boat was built in the garden which took over ten years and, from then until now, it has sat on a pontoon in a marina, where it is being fitted out. The vision was always to make it self sufficient using solar, wind and water power. My condition, what ever it is, always has to go one step further and this applies to the boat. I have removed the windows that were originally put in the boat. There is no natural light in the boat at all. The aim is to create a virtual world, in which you live, and where the windows used to be on the inside, there will be computer flatscreens, so you look out on, on what you choose to look out on and your day can be as long or as short as you want it. You can look out to a tropical sunset or choose to visit Mars. The concept goes far deeper than this, but this is the basic concept. I know I am going far beyond anyone else. Some of the ideas are unique to a boat or even a house.
This is how I would like to be judged, not on how many times I have been hospitalised. My saving grace is that I inherited my mother’s stability. I basically worked out what I inherited from my father, but my mother’s genetic mix is just as interesting to me as my father’s. I have done the family tree on both sides of my family, but there is no obvious link to myself in there, so I have gone back into my DNA stretching back thousands of years. I have a theory which I believe is in my mother’s DNA. I have found in my life, I have had many such theories and usually I am right, when science has caught up.
If the evidence that I have given was accepted, that I had several criteria of manic depression, I could not accept it as absolute proof. As Shakespeare said ‘we are all actors on the stage’ and we can convince the audience or ourselves, of what we are or are not. I believe the casting vote must be in one’s DNA. I rest my case. If you want further verification of what I have written, please go to my daughter’s website (www.drjuliesmith.co.uk). It will reveal both daughters are Doctors of Science. They owe this to the undiagnosed condition.